Importance of Biomarker Testing After a Lung Cancer Diagnosis

This is the 3rd interview I did in my Lung Cancer Patients Living Self-Portrait Series. Biomarker testing is very important. Treatment options are dependent on it. I focus on the patients at this time, but when patients were diagnosed with lung cancer, the shock, the scariness, and the worries are overwhelming. It should be the doctors who give the patients the right advice. In Canada, doctors face another problem of medical coverage. https://lungcancer.net/living/biomarker-testing-diagnosis/

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My friend HaoPei (斐皓) is a Stage 4 lung cancer patient, 37 years old. This picture was taken by him when he travelled in rural China after his diagnosis.

“I Can’t Go On…I’ll Go On”

“I can’t go on…I’ll go on.” These words were carved in my mind. We, especially lung cancer patients, cannot control how long we live in this world; therefore, we have to live fully even if we have to go tomorrow.

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My friend HaoPei (斐皓) is a Stage 4 lung cancer patient, 37 years old. This picture was taken by him when he travelled in rural China after his diagnosis.

How to Talk to Patients as a Volunteer?

Given my experience as a volunteer working with newly diagnosed lung cancer patients for 1-year, I found a noticeable difference due to patients’ culture. The cultural difference should be considered when developing guidelines. Also, it’s important for the volunteers to share about encouraging optimism, confidence and hope. https://lungcancer.net/living/volunteer/

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My friend HaoPei (斐皓) is a Stage 4 lung cancer patient, 37 years old. This picture was taken by him when he travelled in rural China after his diagnosis.

Thank you…

Merry Christmas and Happy New Year. Best wishes to your family.

It’s unbelievable 2019 is almost passed. This year is unusual for me. It was 4.5 years when I diagnosed with lung cancer. I am stable due to targeted therapy and an excellent oncology team.

Having lung cancer sucks. It keeps my family on the toe. But having lung cancer taught me a lot. I could not believe how much I learned and what I had become a different person. The first three years, I felt very “abnormal”, but I awakened since June 2018 that I decided to LIVE even only for a short time. I started to do advocacy. I joined the Canadian Cancer Society talking to newly diagnosed patients. I also joined FB, Twitter and WeChat to communicate with doctors, patients and caregivers to share the knowledge and to encourage each other both in China and the USA. I organised the Winnipeg Lung Cancer Support Group and subsequently, hosted a Winnipeg Lung Cancer Patient Summit. I published two to three articles per month for Health Union (a USA charitable organisation) to give lung cancer patients a voice. I attended international lung cancer research conferences and survivorship conference. Importantly I raised fund for Canadian and American lung cancer charities $2,770 (CND) and $21,441 (USA). I am a tireless advocate.

Besides advocacy, I travelled to five cities in 2019, such as Barcelona (Spain), Washington DC, Les Vegas, Vancouver and Toronto. I got several travel awards as an advocate for lung cancer conferences representing patients and survivors.

From the top to the right in Barcelona in September 2019 1) at the Patient Advocate Travel Award ceremony at IASLC/WCLC2019, 2) at World Conf. of Lung Cancer with other patients 3) with Dr Shaw (the best lung cancer oncologist) in Harvard U, 4) Picasso Museum 5) famous church Sagrada Familia, and 5) the Street food.

From the top to the right 1)-4) Winnipeg Lung Cancer Education Evening, and Winnepeg Lung Cancer Support Group (I was one of the organisers.) and 5) Winnipeg Lung Cancer 3KM Walk Marathon.

 

 

Awareness and Fundraising Go Hand-in-Hand!

It’s the second year I rased fund for lung cancer societies. I anticipated that I would have some challenges this year because I decided to recruit a new list of donors to prevent “donation fatigue” from last year. The fundraising didn’t go well, but… https://lungcancer.net/living/awareness-fundraising/

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My friend HaoPei (斐皓) is a Stage 4 lung cancer patient, 37 years old. This picture was taken by him when he travelled in rural China after his diagnosis.